My
primary care physician referred me to an orthopedic surgeon to finally
figure out a solution to fifteen years of chronic bilateral ankle pain.
I was optimistic but after 15 years of failed alternative methods
including physical therapy, acupuncture, shambala, voodoo medicine and a
bit of old fashioned "suck it up” I knew it was most likely not going
to be great news. I met with the doctor and within a few minutes of
examining my ankles he nodded with confidence then sent me off to get
x-rays with the promise that we would discuss my treatment options upon
return.
I
returned to the exam room and waited, socks off, feet on the cold tile
floor. He returned and assured me that as far as my ankles go, my fears
were true; "You’ve got minimal tread left…about a thousand miles left
on those sixty thousand mile tires”. His metaphor was clear. The course
of treatment for Acquired cavo-varus deformity [aka "minimal tread
left”] was going to include a fairly benign first step of physical
therapy combined with orthotic inserts. No big deal. But if this
process did not work I was to have a bilateral operation which he informed me would require five weeks of bed rest for each ankle and if this was unsuccessful then, "complete ankle replacement” or as a last resort there was always fused anklesas an option. The standout bold type in the preceding sentences was all my brain absorbed.
After
"fused” I shut down. All I heard was the waning ostinato of "wahwahwah
wahwah wah”; similar to what I’m sure Charlie Brown heard from his
phantasmalteacher. In my head I was running through all of my options
regarding how I was going to continue living my life as I know it with
fused ankles. How can I keep running, hiking, skiing, mountaineering,
surfing, etc?, All these things I love to do. How do I keep being who I
am with this set of threadbare tires I’ve got? I’m embarrassed to say I
think I would have been less reactive to news of a death in the family.
After
"fused” I shut down. All I heard was the waning ostinato of "wahwahwah
wahwah wah”; similar to what I’m sure Charlie Brown heard from his
phantasmal teacher. In my head I was running through all of my options
regarding how I was going to continue living my life as I know it with
fused ankles. How can I keep running, hiking, skiing, mountaineering,
surfing, etc?, All these things I love to do. How do I keep being who I
am with this set of threadbare tires I’ve got? I’m embarrassed to say I
think I would have been less reactive to news of a death in the family.
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| After
"fused” I shut down. All I heard was the waning ostinato of "wahwahwah
wahwah wah”
|
It
has been a few days now and I’ve managed to relax a bit and
problem-solve the situation with a clearer head. However, I cannot help
but reflect back to that moment in the doctor’s office trying to think
of what I would have done differently if I were the one giving me the
"bad” news. As an integrated behavioral health provider who consults
with patients on a daily basis about medical issues, what could I have
said or done that would have changed my experience?
I
keep coming back to two different interactions—the first being with the
podiatrist, the other with my mother. The podiatrist could tell that I
was bummed and offered me some story from his youth dealing with "bad
knees” and how he had to stop playing basketball. Not to be callous,
but I have never been able to shoot, nor dribble a basketball and to be
honest; I did not care if he could either. This basketball reference did
nothing for me. I retreated. My mother, in her very sincere, genuine
and overly pragmatic way offered me this: "that must be hard sweetie”
followed by "Aren’t we glad you are not sick like Amy,”a high school
friend of mine recently diagnosed with cancer. Strike two!
Please
don’t misconstrue my sarcasm for antipathy towards my doctor, my
mother, or my high school friend. I do consider myself blessed in most
aspects of my life. I am grateful that my knees are good and I’m cancer
free, but really neither of these things has anything to with
troubleshooting my ankle recovery. Sympathy is not what I needed, nor
wanted. Thinking back, what might have worked better was a bit of
empathy, followed by some problem solving assistance. Second I wanted to
play more of an active role in deciding what the treatment was going to
be or to at least to feel like I did. Intellectually I knew that the
emotional child in me was standing in the way of recovery, but in
reality I wondered if I could just up and change all my activity?
Then
what? If I was to remove something so important in my life (such as
exercise) what was I going to replace it with? And, if I found that
something, what would it take to actualize it all? Lastly, at some
point I wanted to be asked if I had any questions. After I realized my
brain had been shut off for the past five minutes, I had a lot of them.
This
visit galvanized my faith in Motivational Interviewing as a very
effective way of "being with" a patient. Sympathy, apathy and antipathy
do nothing for bonding with a client. The relationship is created
between the provider and the patient through the use of empathy for it
helps in fostering the patient’s autonomy and hopefulness. Figuratively
pulling up next to a patient and reflecting back to them their
difficulties with the current situation and offering empathy in
accordance to their experience. How could my doctor or my mother help if
they had the same feelings and ideas about this situation? What may
have been beneficial was a provision of a shared experience yet through a
different lens; a different point of view based on similar, yet clearly
different, experiences.
Using
the examples once again from the doctor and my mother we can hopefully
glean some insight into a better use of their words. The doctor, instead
of leading into an unsolicited story of his declining athletic prowess
could have led with a simple reflection "I can tell this is going to be
hard for you" and then followed with an open-ended question "when I went
through something similar playing basketball in my youth, I had a hard
time too. How could I help you figure this out?". The difference between
these two versions is slight, but very important. First, the reflection
offers up empathy letting me know he is on my team, second, the request
to offer suggestions encourages me to invite him in, become refractory to his attempt at aligning with me. I believe this
slight modification would have changed my reaction to him and I could
have left with a plan; thus giving me confidence that I could pull this
off. From him I needed a plan. Regarding my mother, although she was
just trying to make me feel better,she could have stopped at "that must be hard". Sometimes less is more. I Love you mom!

| Pete Fifield is the Manager of Integration and Behavioral Health Services at Families First Health and Support Center; an FQHC in Portsmouth NH. Read more of his CFHA blog posts here.
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